Update...it's time...
Well, summer is underway. Madi had a GREAT experience at CRANE youth music camp for two weeks where she studied voice.
She is swimming, having sleepovers, dancing, learning to play guitar and having the most "normal" summer in years, since surgery has been postponed.
Til...today...found out her surgery will be on 8/26 in Pittsburgh, PA. Getting closer to surgery #40. Wow.
Between now and then, Madi will go to the FCCLA leadership council and represent Beaver River for three days, compete in dance at the Lewis County fair, and go to Water Safari ("where the fun never stops"). Most importantly, she will celebrate her 13th birthday with a few memorable parties and many wonderful friends!
It is harder and harder to hold on to what it is that has brought us here- to the somewhat blurry acceptance of these surgical "procedures" and blips in her busy teen life. Make no mistake, nothing is easier, it just "is"...what "it is". Until you have gone through this strange journey on your own, it is impossible to explain. When you live it, you know it.
I love her as much/more than I did thirteen years ago when we started on her miraculous journey... she does know that, I am sure.
I have had so many wishes fulfilled for her, and still have so many more "waiting in the wings". For now, summer opens its' arms to her...my sunshine!
posted by Rhonda Foote @ 6:49 PM
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